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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 3 of 3. This is the beginning of the thread.
Posted by lostforwards on December 1, 2004, at 10:07:30
Honestly I want nothing to do with doctors but I feel obliged to stay with the doctor I have. She's a good doctor, as far being tollerant and nice to talk to. If I leave I may not find another as good as her. My mom is also on my back about ( but I'm 22, it's my decision ). I feel stuck in a rut.
The problem is I've been screwed over by the meds. Doc said the side-effects will go away, but suspiciously wants to start me on epival. Someone told me it was good treatment for those side-effects... I used to just take Lithium. It worked before, and it's working now, why epival?
I'm just fed up with all this junk. I wish (well not really) my tongue were moving around and I had the typical facial twitches you get if you have side-effects but no, I've got to have stereotypies, and arched or twitching eyebrow, and a weak left leg.
You know what's weird? I was just playing my guitar, in other words my fingers in my left hand were moving a lot. When I stopped my arm immediately assumed the position of being held up against my shoulder. What the heck is that?
I know it's not normal.BTW, my left arm hardly ever swings now too. It's been over 2 months and it hasn't improved. On top of that my left knee is weak, and the leg feels very bendable ( not as controlled ), compared to my right leg. My right eyebrow also arches or is twitching.
I don't care what anybody says. I didn't hit my god damn knee. Somethings wrong, the fact that it's my left arm, and my left leg, and my right eyebrow, makes me pretty suspicious too. The fact that it all happened after the use of the drug too is not a coincidence.
I know something's wrong. I'm living through it. And I don't really want to keep seeing my doctor.
Posted by Shortelise on December 1, 2004, at 11:51:08
In reply to this is driving me nuts, posted by lostforwards on December 1, 2004, at 10:07:30
I don't know much about these meds, but isn't Epival a seizure med?
I am a migrainer and the way we deal with meds is if they benefits outweigh the (what is the opposite of benefit??) bad side effects, then it's a good med for us.
But Lithium, well, Lithium is a life saver.
If I were in your shoes, with those very annoying side effects, I think I'd see a neurologist. Epival is a med they use - it's also used for migraine, btw - so you might be able to get another perspective on things there.
It upsets me when we have to take meds to deal with the side effects of other meds.
In medicine, there is just too much info. How can one doc know everything? Even with migraine and neuros, we migrainers very often find we know things they don't, and with a good doc, they will listen and try treatments we would like to try.
You don't say if the doc you are talking about is a psychiatrist of a family doc, or what.
I hope my opinion is useful. Please remember that I don't really know what I am talking about - it's only my opinion!
ShortE
Posted by sunny10 on December 1, 2004, at 13:40:07
In reply to Re: this is driving me nuts » lostforwards, posted by Shortelise on December 1, 2004, at 11:51:08
and there is Depakoate which is used as a migraine med and an antiseizure, and an antipsychotic also I think, so I would think that yes, they are trying to alleviate your symptons without changing the Lithium which you say works for you.
Obviously you are not nuts, it sounds to me like you are developing strange seizure-like side effects, but they don't want to scare you off your Lith, because the good outweighs the bad.
This is the end of the thread.
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