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Dr. Bob is Robert Hsiung, MD,
bob@dr-bob.orgShown: posts 1 to 8 of 8. This is the beginning of the thread.
Posted by mixdup on March 29, 2011, at 22:02:26
I'm new here and am not sure what I have MDD manic bipolar anxiety depression ocd ( medically induced) I have sever psiorasis and can't do anything without checking my skin making sure no one can see I look like a monster I feel like I wronged the universe in some sort of weird way Ans this is payback I also have PsA which pa arthritis related to my psiorasia Ans penning condo of fibromyalga I'm not even 30! I feel a mess and cannot deal on my own and have a limited support system IRL I just meed to talk it out more then every other week I need advice perspective and help and positive support. Thank you to all who read maybe i am not alone it sure feels that way some days
Posted by Phillipa on March 30, 2011, at 12:50:23
In reply to just mixdup, posted by mixdup on March 29, 2011, at 22:02:26
In all honesty I can relate from the opposite perspective as my Mother had psoriasis covering her whole body. Only clear parts of her skin where palms of hands, soles of feet, and face. Scalp was covered. I know those plaques covered our floors. This was back in the 50's and 60's and no meds for it then but ultraviolet lamps and sun and coal tar. She would soak in a bathtub all night to loosen the scales. Horrible illness. She went on to develop psoroiasis rheumatoid arthritis which she said was worse than the psoriasis. Back then no meds. I lost her when she was 48 and I was 17 through complications of cortisone as was new then and they had no idea what it could do to you. So I do relate. I have feared getting it all my life and 65 now she got the psoriasis age 33 the arthritis maybe l0 years later. In a way you are lucky as I see so many new meds for your conditions available today. Which ones are you taking? Fibromyalgia didn't exist in the medical community then. Feel free to write to me. Phillipa
Posted by mixdup on April 1, 2011, at 10:50:10
In reply to Re: just mixdup » mixdup, posted by Phillipa on March 30, 2011, at 12:50:23
.... I have tried the coal tar didn't work and I to have a clear face hands and feet I have also tried the OTC stuff and I have tried all the available creams out there my Dermatologist now has me on a cream and vitamin D combo that is not doing much ... as for phototherapy and being in the sun I burn really easy so that out of the question I have also tried the biological meds humaria was what they tried and I failed it too many side effects so I go back in a few weeks and who knows what is left...... as for the fibromyalga I just found that out a few days ago the day I joined here ...... hearing that spun me a little lower into depression ..... like I have some how wronged the universe and this is my payback the big ha ha moment where the joke is on me ....... fibromyalga is not fun hopefully the new Med Lyrica. Will help with the pain ..... so now I have my own mini pharmacy it feels like and I take so much I feel older then dirt when I see all the pill bottles....... I am seeing a therapists every 2 weeks but I just don't have enough time in that hour to talk about everything ..... so my hope is I can talk to people or a person here and have someone to relate to I just want to be better I know I will probably be taking meds for forever but if it helps then I guess that's OK .... thank you for responding to my post .... I hope to talk to u again soon .... sorry for such a long message I don't have very many people to talk to these days
Posted by Phillipa on April 1, 2011, at 20:25:26
In reply to Re: just mixdup, posted by mixdup on April 1, 2011, at 10:50:10
Oh wow you have tried quite a few meds. Have you ever visited the National Osteoporosis site as it veers off into arthritis and meds also. I know there are other meds for your conditon. Let me see if can copy and paste link for you. I didn't even know they were still using coaltar so icky. Phillipa
Posted by Phillipa on April 1, 2011, at 21:13:07
In reply to Re: just mixdup » mixdup, posted by Phillipa on April 1, 2011, at 20:25:26
Hope this helps Phillipa
Posted by mixdup on April 2, 2011, at 20:36:15
In reply to Re: just mixdup, posted by Phillipa on April 1, 2011, at 21:13:07
Thank you so much for that it has given me some idea of what I haven't tried and may suggest at my next visit :)
Posted by Phillipa on April 2, 2011, at 21:47:02
In reply to Re: just mixdup, posted by mixdup on April 2, 2011, at 20:36:15
I hope I helped a little please keep me posted if you find something that works. Phillipa
Posted by mixdup on April 3, 2011, at 9:38:25
In reply to Re: just mixdup » mixdup, posted by Phillipa on April 2, 2011, at 21:47:02
I will thank you again
This is the end of the thread.
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